Robert W. Bastian M.D.
There is a group of people whose inability to burp causes severe daily distress. They are left without a solution (or even explanation) in spite of many doctor visits. Recently a major cause of inability to burp, retrograde cricopharyngeus dysfunction (R-CPD) has been codified for diagnosis and treatment.*
*A constellation of key symptoms powerfully “makes” the initial diagnosis. Patients can often “make” the tentative diagnosis by matching themselves to this clear syndrome of R-CPD.
THE BIG FOUR SYMPTOMS OF R-CPD THAT PROVIDE VIRTUALLY 100% ACCURACY IN DIAGNOSIS
- Inability to burp. This is almost always, but not exclusively “lifelong,” though persons may not recognize this as a “problem” or “difference from others” until early childhood or teenage years.
- Socially awkward gurgling noises. These noises can be mostly quiet and “internal,” but more often are loud enough to be embarrassing. Mouth opening makes them louder. Almost everyone says they are easily heard several feet away; not infrequently “all the way to the door.” They engender social anxiety in most persons with R-CPD, causing some to avoid eating or drinking for hours before social occasions and even during them. Carbonation makes them much worse and is to be avoided at all costs. Some more colorful patient descriptions: Symphony of gurgles; Croaking frogs; Creaking floorboards; Dinosaur sounds; Strangled whale
- Bloating/pressure. Most common location is high central abdomen. Distention is common, especially later in the day. Using pregnancy as an analogy even in men, the usual degree of distention is described as “3 or 4 months.” “Six months” is not rare, and one slender young man was “full term.” Almost as often as abdominal distress, patients describe chest pressure, and for some that is the worst symptom. Some have pressure in the low neck. While “pressure” is the frequent descriptor, some experience occasional sharp pain in abdomen, back, or between shoulder blades. Some have to lie down after eating to find some relief.
- Flatulence. Routinely, this is described as “major,” or even “ridiculous.” Flatulence increases as the day progresses, and many experience it into the night. When around others, some scan their surroundings at all times for a place they can go briefly to pass gas. Understandably, the social ramifications of this problem can also be major.
COMMON BUT LESS UNIVERSAL R-CPD SYMPTOMS OR EFFECTS
- Nausea, especially after eating larger than normal amounts or drinking carbonated beverages.
- Painful hiccups, again more commonly after eating.
- Shortness of breath. A person can be so full of air that athletics, or even ability to climb stairs, etc. are impaired.
- Hypersalivation when symptoms of bloating are major.
- Inability to vomit. A few simply cannot vomit; more often it is possible but only after strenuous retching. Vomiting (spontaneous or self-induced) always begins with a very loud noise and major release of air in a phenomenon we call “air vomiting.” Emetophobia can be major.
- Anxiety and social inhibition. This can be MAJOR due to gurgling, flatulence, and discomfort.
- (Still under evaluation): The question is whether the descending colon dilates over time if flatulence cannot be responded to, so that muscular effectiveness is diminished.
Check out our list of resources containing peer-reviewed articles, patient stories and more!
Abdominal Distention of R-CPD: Series of 3 photos
Dramatic Lateral Dilation of the Upper Esophagus: Series of 3 photos
What the Esophagus Can Look Like “Below A Burp”: Series of 3 photos
Where have patients traveled from?
This IS real. I have had this my entire life. My mother always said that of her 6 children I am the only one who never spit up as a baby. Early in my career as a speech pathologist I was involved in dysphagia research with GI. The GI was looking for patients with these exact symptoms to study – I knew I fit the group, but did not want to be one of the subjects so kept this to myself. When I have the stomach flu, and when I was pregnant, I was able to eventually vomit, but the pressure was so great that “projectile” does not describe what occurred. It was very painful, loud and distressing. I believe that learning about foods that can contribute to IBS can help with the bloating, pressure and flatulence. I used the low FODMOP diet to determine foods that I am more sensitive to. By eliminating them, I have reduced these symptoms, although it’s certainly not perfect. I have never liked carbonated drinks because of the inability to burp, although I think I can tolerate this a little better as I have gotten older…maybe things are stretching or less rigid/tight than when I was younger. I still cannot burp volitionally or in response to air in the upper GI tract.
Can someone please, please tell me where we can find help with this in the Jacksonville FL area? My husband has been trying for months and months and no-one seems to be able to figure out what is wrong. He has had at least 3 upper and lower GI procedures done, MRI and CAT scans and they just keep pushing him off. He is miserable ever time he eats which in turns make the entire family that way. I am desperate to find him help.
I have suffered with these exact symptoms all my life and have simply been told it’s IBS and GERD or other. I have never been able to burp, I’ve always had gargling like a frog in the throat and my bloating is excessive. I describe it as me looking 6 months pregnant. Again this I have suffered with all my life too. I have other symptoms, pain, pressure, inability to vomit unless extremely ill and when I have it would be painful and violent and nausea. I couldn’t believe how much I could relate to this condition. I am now trying to find someone who can diagnose in the U.K. preferably West Country. Why these conditions aren’t more widely studied is unknown but I’m determined to get a diagnosis and spread the word.